Young couple's joy turns to anguish as newborn diagnosed with rare genetic disorder

Paisley has undergone three surgeries, five straight days of chemotherapy and recently received a bone marrow transplant. The family will be taking up residence in a Ronald McDonald house, once they are discharged from the hospital, for 100 days as Paisley continues enzyme treatments and monitoring. Right; Parents Elizabeth Peterson and Chandler Kvamme welcomed their baby girl Paisley in October. After Paisley’s chemo treatments Chandler and many friends and family shaved their heads in support of Paisley.

Paisley was born with a rare genetic disorder called MPS 1 or Hurler Syndrome. She has undergone several surgeries, chemotherapy and a bone marrow transplant. A GoFundMe has been set up to help the family.

by Trinity Gruenberg

trinity@inhnews.com

A young couple from Wadena was excited for the birth of their first child, a beautiful baby girl named Paisley. Their happiness was short-lived after a newborn screening revealed some devastating news.

Parents Elizabeth Peterson, who will be 23 on April 5, and Chandler Kvamme, 25, both Bertha-Hewitt graduates, were elated to start a family.

On October 28, 2022, they welcomed their baby girl Paisley into the world. Doctors informed them the newborn screening revealed Paisley had a rare genetic disorder called MPS 1 or Hurler Syndrome that required immediate attention if she were to have a longer and better quality of life. . .

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